I would recommend the following M.E. related articles to you, and would like to thank Stephen Ralph of MEActionUK (www.meactionuk.org.uk) and Matthew Hogg of The Environmental Illness Resource (www.ei-resource.org) for allowing me to give links to articles that they have placed on their websites. Many thanks also to the authors who have given of their time and effort in writing them.
Please note: these articles will open in a separate browser window.
Articles from the MEActionUK website -
A couple of "must read" articles to start with -
What is M.E.? What is C.F.S.? (December 2001)
Malcolm Hooper, Margaret Williams, Eileen Marshall
http://www.meactionuk.org.uk/What_Is_ME_What_Is_CFS.htm
The Mental Health Movement: Persecution of Patients? (December 2003)
A consideration of the role of Professor Simon Wessely and other members of the "Wessely School" in the perception of Myalgic Encephalomyelitis (M.E.) in the U.K.
Malcolm Hooper
http://www.meactionuk.org.uk/SELECT_CTTEE_FINAL_VERSION.htm
The following five documents were prepared for the Judicial Review of February 2009 -
Background information and illustrations of evidence that CBT cannot improve ME/CFS which NICE disregarded (25 July 2008)
Margaret Williams
http://www.meactionuk.org.uk/Background_Information_re_CBT.htm
Evidence that the Guideline Development Group that produced the NICE Guideline on CFS/ME (CG53) failed to fulfil its remit (particularly in relation to the potential dangers of graded exercise therapy) (7 July 2008)
Margaret Williams
http://www.meactionuk.org.uk/FACTS_re_GET.htm
Evidence of cardiovascular problems in ME/CFS that NICE disregarded (4 August 2008)
Margaret Williams
http://www.meactionuk.org.uk/Cardiovascular.htm
Immunological, neuroendocrine and neurological evidence (including evidence of CNS inflammation) documented in ME/CFS that NICE chose to ignore in the production of its Clinical Guideline 53 (31 August 2008)
Margaret Williams
http://www.meactionuk.org.uk/Immunol_and_neuroendo.htm
Medication and ME/CFS? (27 August 2008)
Margaret Williams
http://www.meactionuk.org.uk/Medication_and_ME.htm
Other articles from the MEActionUK website -
Memo to NICE re: CG53 revision (29 August 2010)
Margaret Williams
http://www.meactionuk.org.uk/Memo-to-NICE.htm
Update on Complaint to the MRC about the PACE Trial in the light of the confirmation of a strong association of a retrovirus with myalgic encephalomyelitis / chronic fatigue syndrome (25 August 2010)
Margaret Williams
http://www.meactionuk.org.uk/Update-on-MRC-complaint.htm
More Evidence of the Organic Nature of Multiple Chemical Sensitivity (6 July 2010)
Margaret Williams
http://www.meactionuk.org.uk/More-MCS-evidence.htm
Response from the National Patient Safety Agency to Complaint about the PACE Trial (14 April 2010)
Margaret Williams
http://www.meactionuk.org.uk/NRES-response.htm
Submission re: DSM-V and ME/CFS (20 March 2010)
Compiled by Professor Malcolm Hooper and Margaret Williams for submission by The 25% ME Group
http://www.meactionuk.org.uk/DSM-V-submission.htm
Ethical and Scientific Concerns about the MRC PACE Trial (1 March 2010)
Malcolm Hooper
http://www.meactionuk.org.uk/MREC-complaint.htm
Letter from Malcolm Hooper to Sir Michael Rawlins, Chairman of NICE (19 February 2010)
Malcolm Hooper
http://www.meactionuk.org.uk/Hooper-signed-letter-to-Rawlins.htm
Magical Medicine: How to make a disease disappear (February 2010)
Background to, consideration of, and quotations from the Manuals for the Medical Research Council’s PACE Trial of behavioural interventions for Chronic Fatigue Syndrome / Myalgic Encephalomyelitis, together with evidence that such interventions are unlikely to be effective and may even be contraindicated
Malcolm Hooper
http://www.meactionuk.org.uk/magical-medicine.pdf (6 Mb)
(Please see also: http://www.meactionuk.org.uk/magical-medicine.htm and http://magical-medicine.blogspot.com/)
Documented involvement of viruses in ME/CFS (30 December 2009)
Margaret Williams
http://www.meactionuk.org.uk/Documented-involvement-of-viruses-in-ME.htm
Can the MRC PACE trial be justified? (17 December 2009)
Margaret Williams
http://www.meactionuk.org.uk/Can-the-MRC-PACE-Trial-be-justified.htm
Statements of Concern about CBT/GET provided for the High Court Judicial Review of February 2009 (12 December 2009)
Margaret Williams
http://www.meactionuk.org.uk/Statements-of-Concern-for-High-Court.htm
The Medical Research Council's secret files on ME/CFS (10 December 2009)
Margaret Williams
http://www.meactionuk.org.uk/The-MRC-secret-files-on-ME.htm
The role of viruses in ME/CFS: what, if any, will be the effect of the discovery linking XMRV to ME/CFS on the MRC PACE Trial? (21 November 2009)
Margaret Williams
http://www.meactionuk.org.uk/The-role-of-viruses-in-ME.htm
More evidence of inflammation in (ME)CFS (14 November 2009)
Margaret Williams
http://www.meactionuk.org.uk/More-evidence-of-inflammation-in-(ME)CFS.htm
Retrovirus associated with ME (9 October 2009)
Much of this encouraging new ground-breaking research is linked with the Whittemore Peterson Institute (WPI) in the USA; for further information see http://wpinstitute.org/xmrv/index.html
There is a lot of information about the research available on the internet already, with links to many of the articles on the following webpage on the MEActionUK website: http://www.meactionuk.org.uk/XMRV_News.html
Documented pathology seen in ME/CFS that contra-indicates the use of graded exercise therapy (23 July 2009)
Margaret Williams
http://www.meactionuk.org.uk/Documented_pathology_seen_in_ME-CFS.htm
Statements of Concern about Cognitive Behavioural Therapy and Graded Exercise Therapyprovided forthe High Court Judicial Review of February 2009 (22 July 2009)
Margaret Williams
http://www.meactionuk.org.uk/JR_Statements_-_extracts.htm
ME/CFS: Classification Issues (3 May 2009)
Margaret Williams
http://www.meactionuk.org.uk/ME_CFS_Classification_Issues.htm
ME/CFS: Terminology (1 May 2009)
Margaret Williams
http://www.meactionuk.org.uk/ME_CFS_TERMINOLOGY.htm
Evidence that ME/CFS is not a somatisation disorder (26 April 2009)
Margaret Williams
http://www.meactionuk.org.uk/ME_CFS_is_not_a_somatisation_disorder.htm
A NICE Conundrum? (30 December 2008)
Margaret Williams
http://www.meactionuk.org.uk/A_NICE_Conundrum.htm
ME/CFS: UK versus UK (22 December 2008)
Margaret Williams
http://www.meactionuk.org.uk/UK_v_US.htm
A NICE Dilemma? (15 December 2008)
Margaret Williams
http://www.meactionuk.org.uk/A_NICE_DILEMMA.htm
More zombiefication of ME/CFS (17 August 2008)
Margaret Williams
http://www.meactionuk.org.uk/More_Zombiefication_of_MECFS.htm
Zombie Science in ME/CFS? (15 August 2008)
Margaret Williams
http://www.meactionuk.org.uk/Zombie_science_in_MECFS.htm
Faculties Failure? (25 May 2008)
Margaret Williams
http://www.meactionuk.org.uk/Faculties_Failure.htm
Wessely's Way: Rhetoric or Reason? (22 March 2008)
Malcolm Hooper, Margaret Williams
http://www.meactionuk.org.uk/Wesselys_Way.htm
Evidence of efficacy? (10 March 2008)
Margaret Williams
http://www.meactionuk.org.uk/EVIDENCE_OF_EFFICACY.htm
Deliberate Deceit or Inexcusable Ignorance? (4 March 2008)
Margaret Williams
http://www.meactionuk.org.uk/Deliberate_Deceit.htm
Essential Investigations for people withME/CFS? (16 January 2008)
Margaret Williams
http://www.meactionuk.org.uk/Essential_investigations_for_people_with_ME.htm
More potential dangers of the NICE Guideline on "CFS/ME" for people with ME/CFS (2 January 2008)
Margaret Williams
http://www.meactionuk.org.uk/Dangers_of_NICE_for_MECFS.htm
Whiter than white? (6 November 2007)
Margaret Williams
http://www.meactionuk.org.uk/Whiter_than_white.htm
NICE: GIGA (Garbarge-in, Garbage-out) (24 October 2007)
Margaret Williams
http://www.meactionuk.org.uk/NICE_-_GIGA.htm
UNUM United? (13 October 2007)
Eileen Marshall, Margaret Williams
http://www.meactionuk.org.uk/UNUM_UNITED.htm
Coercion as cure? (21 September 2007)
Eileen Marshall, Margaret Williams
http://www.meactionuk.org.uk/COERCION_AS_CURE.htm
Corporate Collusion? (September 2007)
Malcolm Hooper, Eileen Marshall, Margaret Williams
http://www.meactionuk.org.uk/Corporate_Collusion_2.htm
Comments on the NICE Guideline on "CFS/ME" (29 August 2007)
Margaret Williams
http://www.meactionuk.org.uk/Comments_on_the_NICE_Guidelines.htm
Wessely, Woodstock and Warfare? (9 August 2007)
Margaret Williams
http://www.meactionuk.org.uk/Wessely_Woodstock_and_Warfare.htm
Defiance of Science (12 July 2007)
Malcolm Hooper, Margaret Williams
http://www.meactionuk.org.uk/Defiance_of_Science.htm
Promises, promises? (12 May 2007)
Margaret Williams
http://www.meactionuk.org.uk/Promises_Promises.htm
NICE Tactics (1 March 2007)
Margaret Williams
http://www.meactionuk.org.uk/NICE_TACTICS.htm
Facts from Florida (16 February 2007)
A synopsis of the 8th International Association of Chronic Fatigue Syndrome (IACFS) Conference which was held at Fort Lauderdale, Florida, from 10 - 14 January 2007.
Margaret Williams
http://www.meactionuk.org.uk/Facts_from_Florida.htm
Notes for NICE (6 February 2007)
Margaret Williams
http://www.meactionuk.org.uk/Notes_for_NICE.htm
A Response and Appreciation of the Gibson Inquiry Report (5 December 2006)
Malcolm Hooper
http://www.meactionuk.org.uk/Hooper_response_to_Gibson_Report.htm
A few facts about the Gibson Report (29 November 2006)
Margaret Williams
http://www.meactionuk.org.uk/A_few_facts_about_the_Gibson_Report.htm
A Medical Morass? (17 November 2006)
Margaret Williams
http://www.meactionuk.org.uk/A_Medical_Morass.htm
Klimas, Wessely and NICE: Redefining CBT? (10 November 2006)
Margaret Williams
http://www.meactionuk.org.uk/Klimas_Wessely_and_NICE_-_Redefining_CBT.htm
Some concerns about the NICE draft guideline issued on the 29th September 2006 on diagnosis and management of CFS/ME in adults and children (19 October 2006)
Margaret Williams (Nominated respondent with The 25% ME Group for the Severely Affected)
http://www.meactionuk.org.uk/Concerns_re_NICE_Draft.htm
Incessant belief? (19 September 2006)
Eileen Marshall, Margaret Williams
http://www.meactionuk.org.uk/Incessant_belief.htm
Compassion control? (2 September 2006)
Margaret Williams
http://www.meactionuk.org.uk/Compassion_Control_020906.htm
M.E. Exists - True or False? (18 August 2006)
Eileen Marshall, Margaret Williams
http://www.meactionuk.org.uk/ME_Exists_-_True_or_False.htm
A farewell message for Professor Wessely? (19 July 2006)
Margaret Williams
http://www.meactionuk.org.uk/A_Farewell_Message_for_Professor_Wessely.htm
Informal notes on the issue of funding biomedical research into ME/CFS (17 July 2006)
Margaret Williams
http://www.meactionuk.org.uk/Notes_on_funding.htm
Inquest Implications? (16 June 2006)
Eileen Marshall, Margaret Williams
http://www.meactionuk.org.uk/Inquest_Implications.htm
A gleam of light at last? (12 June 2006)
Eileen Marshall, Margaret Williams
http://www.meactionuk.org.uk/A_gleam_of_light_at_last.htm
Cognitive impairment? (12 May 2006)
Eileen Marshall, Margaret Williams
http://www.meactionuk.org.uk/Cognitive_Impairment.htm
Some of the abnormalities that have been demonstrated in ME/CFS (31 March 2006)
Eileen Marshall, Margaret Williams
http://www.meactionuk.org.uk/MECFS_peer-reviewed_research_data.htm
More on the myth? (21 March 2006)
Eileen Marshall, Margaret Williams
http://www.meactionuk.org.uk/More_on_the_Myth.htm
The model of the myth? (17 March 2006)
Eileen Marshall, Margaret Williams
http://www.meactionuk.org.uk/The_Model_of_the_Myth.htm
Pinching's perception? (20 January 2006)
Eileen Marshall, Margaret Williams
http://www.meactionuk.org.uk/Pinchings_Perception.html
Evidence-based Policy or Policy-based Evidence? (20 November 2005)
Prof Malcolm Hooper, Eileen Marshall, Margaret Williams
http://www.meactionuk.org.uk/Evidence_based_Policy_or_Policy_based_Evidence.html
For UK Parliamentary Inquiry into ME/CFS : Chronilogical list of documents relevant to the Inquiry authored by Professor Malcolm Hooper, Eileen Marshall and Margaret Williams (7 November 2005)
http://www.meactionuk.org.uk/FOR_UK_PARLIAMENTARY_INQUIRY_INTO_ME.htm
Unanswered questions: do inconsistencies matter in medicine? (10 September 2005)
Margaret Williams
http://www.meactionuk.org.uk/Unanswered_Questions.htm
Proof positive? (30 August 2005)
Eileen Marshall, Margaret Williams
http://www.meactionuk.org.uk/PROOF_POSITIVE.htm
ME: Why no accountability? - a synopsis for the UK Parliamentary Inquiry (18 August 2005)
Malcolm Hooper, Margaret Williams
http://www.meactionuk.org.uk/ME_-_WHY_NO_ACCOUNTABILITY.htm
A final farewell to the psychiatric fallacy? (13 August 2005)
Margaret Williams
http://www.meactionuk.org.uk/A_FINAL_FAREWELL_TO_THE_PSYCHIATRIC_FALLACY.htm
ME: Organic or psychiatric - decision time? (2 August 2005)
Eileen Marshall, Margaret Williams
http://www.meactionuk.org.uk/ME_Organic_or_Psychiatric_-_Decision_Time.htm
Another Meadow? (15 July 2005)
Margaret Williams, Eileen Marshall
http://www.meactionuk.org.uk/Another_Meadow.htm
Politically-modified research? (25 June 2005)
Eileen Marshall, Margaret Williams
http://www.meactionuk.org.uk/Politically-modified_Research.htm
Evidence-Based Psychiatry? (11 June 2005)
Margaret Williams, Eileen Marshall
http://www.meactionuk.org.uk/Evidence-based_Psychiatry.htm
WARNING: UK Prime Minister's Strategy Unit on Mental Health (26 May 2005)
Eileen Marshall, Margaret Williams
http://www.meactionuk.org.uk/WARNING_UK_PM_strategy.htm
Vilified but Vindicated? (29 April 2005)
Malcolm Hooper, Margaret Williams, Eileen Marshall
http://www.meactionuk.org.uk/Vilified_but_Vindicated.htm
CDC Provides Clarification At Last? (25 April 2005)
Margaret Williams
http://www.meactionuk.org.uk/CDC_Provides_Clarification_At_Last.htm
Profits Before Patients? (15 April 2005)
Margaret Williams, Eileen Marshall
http://www.meactionuk.org.uk/The_MRC_Profits_before_Patients.htm
Science or Psychology? (29 March 2005)
Margaret Williams
http://www.meactionuk.org.uk/Science_or_Psychology.htm
Wessely's Wisdom? Some more open questions for Prof Wessely (16 January 2005)
Margaret Williams
http://www.meactionuk.org.uk/Wesselys_Wisdom.htm
Note on the term "Myalgic Encephalomyelitis" (16 October 2004)
Margaret Williams, Eileen Marshall
http://www.meactionuk.org.uk/Note_on_the_term_ME.htm
Sinister Science? (6 June 2004)
Margaret Williams
http://www.meactionuk.org.uk/sinisterscience.htm
Details of some other documents of relevance to the ME/CFS community
http://www.meactionuk.org.uk/Documents_of_importance.htm
Articles from The Environmental Illness Resource website -
The Diagnosis and Treatment of an Endemic Illness - Thyroid and Adrenal Dysfunction
Dr Barry Peatfield
http://www.ei-resource.org/articles/related-conditions-articles/the-diagnosis-and-treatment-of-an-endemic-illness-(thyroid-and-adrenal-dysfunction)/
The Heart of the Matter: CFS and Cardiac Issues
Dr Paul Cheney, Carol Sieverling
http://www.ei-resource.org/articles/chronic-fatigue-syndrome-articles/the-heart-of-the-matter:-cfs-&-cardiac-issues/
Vitamin D could save your life!
Dr Jacob Teitelbaum
http://www.ei-resource.org/expert-columns/dr.-jacob-teitelbaums-column/vitamin-d-could-save-your-life/
