This video [which is just under 15 minutes long] is from the project ‘Dialogues from a Neglected Illness’ – supported by a Wellcome Public Engagement Fund Award 2018 / 21. The project addresses different aspects of ME/CFS and includes interviews and input from doctors, researchers, patients, carers and advocates.
Produced by Natalie Boulton, with cameraman and editor Josh Biggs.
Please go to the project website dialogues-mecfs.co.uk for more information and to see other videos
To watch the video on Severe ME and Very Severe ME, please go to